Etc. — BLOG — Little Lobbyists

"101" Series
- Aug 1, 2024 Know Your Rights: The Community Integration Mandate (by Jeneva Stone) Aug 1, 2024
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- Jun 21, 2024 Know Your Rights: The Olmstead Decision (by Jeneva Stone & Laura LeBrun Hatcher) Jun 21, 2024
- Sep 28, 2023 What Is “Section 504”? Disability Rights 101 (by Jeneva Stone) Sep 28, 2023
- Sep 29, 2022 The ENFit Transition: Advice and Information for Families (by Jeneva Stone) Sep 29, 2022
- Jul 28, 2022 When Your Life Depends on Your Zipcode (By Rob & Jeneva Stone) Jul 28, 2022
- Apr 28, 2022 Pass the Better Care Better Jobs Act--We Need Home and Community-Based Services Now! (by Jeneva Stone) Apr 28, 2022
- Feb 17, 2022 Living the Life You Want: Self-Directed Services 101 (by Jeneva Stone) Feb 17, 2022
- Oct 22, 2021 Home and Community-Based Services Are a Human Right (by Jeneva Stone) Oct 22, 2021
- Aug 26, 2021 Medicaid 101: Human Infrastructure & Civil Rights (by Jeneva Stone & Laura Hatcher) Aug 26, 2021
- Aug 19, 2021 Why My Family Says “Disabled” Instead of “Special Needs” (by Jeneva Stone) Aug 19, 2021
- Apr 29, 2021 Using Our Words: Being a Better Disability Ally (by Jeneva Stone) Apr 29, 2021
- Jul 23, 2020 Keeping Our Families Together: Home and Community-Based Services 101 (by Jeneva Stone) Jul 23, 2020
Capitol Hill
- Dec 3, 2024 A Tribute to Congresswoman Jennifer Wexton: A Legacy of Compassionate and Inclusive Leadership (by Tasha Nelson) Dec 3, 2024
- Nov 4, 2024 More Than a Treat – Little Lobbyists Kids at the White House for Hallo-read! Nov 4, 2024
- Dec 15, 2022 Thank You, Speaker Pelosi! (by Elena Hung) Dec 15, 2022
- Jun 29, 2022 Little Lobbyists Is 5! Our Story Is All About Social Justice Jun 29, 2022
- May 13, 2022 Care Can't Wait: HCBS Now! (by Jamie Davis Smith & Rob Stone) May 13, 2022
- Jan 7, 2021 This Is What Democracy Looks Like Jan 7, 2021
- Mar 10, 2020 Novel Coronavirus Response Must Include Affordable, Equal Access to Treatment for ALL (by Yasmin Canales) Mar 10, 2020
- Feb 24, 2020 Medicaid: A Blanket Statement (by Cristina Perez Edmunds) Feb 24, 2020
- Feb 11, 2020 Four Little Lobbyists Moms Share State of the Union Experience Feb 11, 2020
- Dec 11, 2019 Vote Now to Reduce Prescription Drug Prices! (by Louisa’s mom, Andrea) Dec 11, 2019
- Oct 13, 2019 Medicine is only life saving if we can afford it. (by Tasha Nelson) Oct 13, 2019
- Jan 21, 2019 The Disability Integration Act Jan 21, 2019
- Jan 13, 2019 Speaker of the House (by Stacy Staggs) Jan 13, 2019
- Sep 30, 2018 Protect Children with Complex Medical Needs and Disabilities: Little Lobbyists Oppose Appointing Judge Kavanaugh to the Supreme Court (STATEMENT) Sep 30, 2018
- Feb 27, 2018 HR 620, Call to Action (by Ben Zeitler) Feb 27, 2018
- Oct 9, 2017 Little Lobbyists’ Letter to U.S. Senators on the Graham-Cassidy health care repeal bill Oct 9, 2017
Caregivers
- Apr 26, 2024 Because Care Can’t Wait! Apr 26, 2024
- Apr 18, 2024 Knowing How to Do All the Stuff: An Interview with Kelley Coleman (by Jeneva Stone) Apr 18, 2024
- Sep 23, 2022 When No One Consults the Disability Community: The Unfit Transition to ENFit (by Sandra Joy Stein) Sep 23, 2022
Caregiving
- Sep 5, 2024 #CareCantWait: Reflections from the Bus Tour (By Elena Hung) Sep 5, 2024
Elections
- Nov 4, 2024 More Than a Treat – Little Lobbyists Kids at the White House for Hallo-read! Nov 4, 2024
- Jul 25, 2024 Health Care Spotlight: Kamala Harris Jul 25, 2024
Family Advocacy
- Dec 3, 2024 A Tribute to Congresswoman Jennifer Wexton: A Legacy of Compassionate and Inclusive Leadership (by Tasha Nelson) Dec 3, 2024
- Nov 4, 2024 More Than a Treat – Little Lobbyists Kids at the White House for Hallo-read! Nov 4, 2024
- Nov 3, 2024 Unraveling Bias in Healthcare: We Need NICU Advocates (by Anne Louis) Nov 3, 2024
- Aug 27, 2024 What I Learned by Advocating with Little Lobbyists (by Anne Louis) Aug 27, 2024
- Aug 13, 2024 Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone) Aug 13, 2024
- Aug 9, 2024 We Belong: Why Community Integration Matters Aug 9, 2024
- Aug 1, 2024 Know Your Rights: The Community Integration Mandate (by Jeneva Stone) Aug 1, 2024
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- Apr 26, 2024 Because Care Can’t Wait! Apr 26, 2024
- Apr 18, 2024 Knowing How to Do All the Stuff: An Interview with Kelley Coleman (by Jeneva Stone) Apr 18, 2024
- May 31, 2023 Save IDEA: Aaron Holzmueller (Illinois) May 31, 2023
- May 30, 2023 Save Medicaid & IDEA: Ethan & Christy Judd (Virginia) May 30, 2023
- May 23, 2023 Save Medicaid & IDEA: Meghann & Miles Luczkowski (Pennsylvania) May 23, 2023
- Sep 23, 2022 When No One Consults the Disability Community: The Unfit Transition to ENFit (by Sandra Joy Stein) Sep 23, 2022
- Aug 4, 2022 Supporting Your Disabled Child In Adulthood (by Grace Dow) Aug 4, 2022
- May 19, 2022 Remembering Julie Beckett: Discovering Our Strength May 19, 2022
- Mar 31, 2022 The ACA Is Here to Stay--So Let's Improve It (by Laura Hatcher) Mar 31, 2022
- Jan 19, 2022 Support Seizure Safe Schools NOW! (by Lauren Shores Shillinger) Jan 19, 2022
- Dec 27, 2021 Dear Josephine Dec 27, 2021
- Nov 11, 2021 Our Daughter Becca Is an HCBS Success Story: Let’s End Waiting Lists Now! (by Ann Yurcek) Nov 11, 2021
- Oct 29, 2021 Why We Must Eradicate HCBS Waiting Lists (by Carolyn Murray) Oct 29, 2021
- Oct 11, 2021 An Open Letter to Senator Kyrsten Sinema Oct 11, 2021
- Sep 30, 2021 My Son’s Nurse Can’t Survive on What She’s Paid (by Kimberly Crawley) Sep 30, 2021
- Sep 2, 2021 Caregivers Need a Living Wage: Pass the Better Care Better Jobs Act Now! (by Elvina Scott) Sep 2, 2021
- Jul 20, 2021 Why I’m Fighting for Home and Community-Based Services: An Interview with Jen Reese Jul 20, 2021
- Jul 19, 2021 An Open Letter to Senator Mark Warner: Don't Leave Caregiving Out of the Infrastructure Bill (by Jill Jacobs) Jul 19, 2021
- Jun 22, 2021 A Reflection on the Healing Power of the Affordable Care Act (by Peter Witzler) Jun 22, 2021
- Apr 22, 2021 Everyone Should Be Eligible for Organ Transplants (by Julie Ayers) Apr 22, 2021
- Apr 20, 2021 It Is Time to Legalize Cannabis (by Erin Gabriel) Apr 20, 2021
- Mar 18, 2021 Why I Fear for My Child’s Safety (by Amy Koné) Mar 18, 2021
- Dec 3, 2020 Keeping Spirits Bright with Little Lobbyists: Decorations, Nostalgia & Advocacy with Free Printable Holiday Cards Dec 3, 2020
- Nov 24, 2020 Preventing Trauma at School with the “Keeping All Students Safe Act” (by Daya Chaney Webb) Nov 24, 2020
- Nov 17, 2020 November: A Time for Epilepsy & ACA Awareness (by Laura Leeman) Nov 17, 2020
- Nov 12, 2020 We Deserve Better: Why I Support the ACA (by Jamie Davis Smith) Nov 12, 2020
- Nov 9, 2020 Why I’m a Member of Little Lobbyists / ¿Por qué soy miembro de Little Lobbyists? (by/por Walewska Watkins) Nov 9, 2020
- Nov 5, 2020 Before the ACA My Health Insurance Was Junk (by Amanda Upton) Nov 5, 2020
- Nov 2, 2020 Walk Away from Bullies, Pull Up a Chair & Listen to My Family (by Erin Raffety) Nov 2, 2020
- Sep 24, 2020 Health Care Is a Human Right: Save the Affordable Care Act (by Lori Hensler) Sep 24, 2020
- Sep 10, 2020 I Love the Sound of My Daughter's Voice (by Stacy Staggs) Sep 10, 2020
- Jul 9, 2020 Gifts I Am Sharing with My Son (by Rico Winston) Jul 9, 2020
- Jul 2, 2020 Sharing the Journey with Jeneva: Jamie Davis Smith on Writing About Children with Disabilities Jul 2, 2020
- Jun 25, 2020 Owning Our Lives: How the ACA Freed Us from Employer-based Health Care (by Angela Eilers) Jun 25, 2020
- Feb 24, 2020 Medicaid: A Blanket Statement (by Cristina Perez Edmunds) Feb 24, 2020
- Feb 3, 2020 Be Louder: One Year Later (by Sydney Aleshire) Feb 3, 2020
- Jan 30, 2020 Wheelchairs Aren’t a Second-best Life (by Maya Brown-Zimmerman) Jan 30, 2020
- Jan 22, 2020 Accessible Restrooms aren't a "Special" Need. (by Laura Hatcher) Jan 22, 2020
- Oct 13, 2019 Medicine is only life saving if we can afford it. (by Tasha Nelson) Oct 13, 2019
- Jul 8, 2019 Texas v. U.S. – EVERY American's Health Care is On the Line (by Laura Leeman) Jul 8, 2019
- May 9, 2019 From Parent to Ally: Listening to the Experts on Autism (by Daya Chaney Webb) May 9, 2019
- Apr 30, 2019 The Power of Medicaid (by Jeneva and Robert Stone) Apr 30, 2019
- Apr 24, 2019 #StopTheShock (by Laura Hatcher) Apr 24, 2019
- Apr 1, 2019 From Parent, to Advocate, to Leader (by Jessica Fox) Apr 1, 2019
- Feb 27, 2019 A Vote for Readler is a Vote Against People with Pre-Existing Conditions (by Maya Brown-Zimmerman) Feb 27, 2019
- Feb 21, 2019 Keep Health Care in Mind When You Vote (by Jodi Aleshire) Feb 21, 2019
- Jan 31, 2019 January (by Tasha Nelson) Jan 31, 2019
- Jan 22, 2019 My Son is in Hospice and his Healthcare Matters (by Tonya Prifogle) Jan 22, 2019
- Jan 21, 2019 The Disability Integration Act Jan 21, 2019
- Nov 6, 2018 Of Mickey Mouse and Congressmen (by Sandra Joy Stein) Nov 6, 2018
- Nov 4, 2018 Raising Our Voices Together to Make a Difference (by Aiden Abbott, age 13) Nov 4, 2018
- Oct 27, 2018 “If there is anything you need, please let us know” (by Kate Green) Oct 27, 2018
- Oct 21, 2018 Every Child Deserves a Chance (by Amy & Erik Boyle) Oct 21, 2018
- Oct 14, 2018 Don't Crowd-Fund Health Care; Vote For It (by Tasha Nelson) Oct 14, 2018
- Oct 7, 2018 Why I’m Speaking Up (by Stacy Staggs) Oct 7, 2018
- Sep 1, 2018 A Book that Shaped Me: Best Friends on Wheels by Debra Shirley (by Ben Smith, 5th Grade) Sep 1, 2018
- Jun 15, 2018 Celebrating Father's Day (by Josh Fyman) Jun 15, 2018
- Jun 7, 2018 You're The One You've Been Waiting For (by Laura Hatcher) Jun 7, 2018
Family Stories
- Oct 4, 2024 Meet Jenny: Our New HCBS Policy Director! Oct 4, 2024
- Aug 13, 2024 Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone) Aug 13, 2024
- Jul 17, 2023 Vacations Can Be Accessible and Enjoyable (by Grace Dow) Jul 17, 2023
- May 31, 2023 Medicaid & IDEA--What's at Stake: Grace Dow (Massachusetts) May 31, 2023
- Apr 13, 2023 Inclusive White House Easter Egg Fun! Apr 13, 2023
- Dec 4, 2022 Why Carly Bloomingdale Is a Little Lobbyists Voter in Georgia! Dec 4, 2022
- Aug 4, 2022 Supporting Your Disabled Child In Adulthood (by Grace Dow) Aug 4, 2022
Federal Issues
- Feb 3, 2025 Saving Medicaid: What You Can Do (by Jeneva Stone) Feb 3, 2025
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- Jun 21, 2024 Know Your Rights: The Olmstead Decision (by Jeneva Stone & Laura LeBrun Hatcher) Jun 21, 2024
- May 2, 2024 Historic News: Prohibiting Disability Discrimination in Federal Programs! (by Jeneva Stone) May 2, 2024
- Apr 26, 2024 Because Care Can’t Wait! Apr 26, 2024
- Apr 23, 2024 Action Alert: Make Airlines Accountable to Disabled Travelers! (by Jamie Davis Smith) Apr 23, 2024
- Sep 28, 2023 What Is “Section 504”? Disability Rights 101 (by Jeneva Stone) Sep 28, 2023
- Apr 13, 2023 Inclusive White House Easter Egg Fun! Apr 13, 2023
- Sep 23, 2022 When No One Consults the Disability Community: The Unfit Transition to ENFit (by Sandra Joy Stein) Sep 23, 2022
- Apr 22, 2021 Everyone Should Be Eligible for Organ Transplants (by Julie Ayers) Apr 22, 2021
- Apr 20, 2021 It Is Time to Legalize Cannabis (by Erin Gabriel) Apr 20, 2021
- Nov 24, 2020 Preventing Trauma at School with the “Keeping All Students Safe Act” (by Daya Chaney Webb) Nov 24, 2020
- Oct 2, 2020 I Oppose Amy Coney Barrett’s Nomination to the Supreme Court (by Shannon Striner) Oct 2, 2020
- Sep 3, 2020 Spelling It Out: The ADA and the Right to Community (by Bob Williams) Sep 3, 2020
- Apr 14, 2020 Sharing the Journey with Jeneva: Samantha McGovern COVID-19 Thoughts Apr 14, 2020
- Mar 10, 2020 Novel Coronavirus Response Must Include Affordable, Equal Access to Treatment for ALL (by Yasmin Canales) Mar 10, 2020
- Dec 11, 2019 Vote Now to Reduce Prescription Drug Prices! (by Louisa’s mom, Andrea) Dec 11, 2019
- Oct 13, 2019 Medicine is only life saving if we can afford it. (by Tasha Nelson) Oct 13, 2019
- Jun 26, 2019 Any of Us Could Be a Refugee (by Jeneva Burroughs Stone) Jun 26, 2019
- Apr 24, 2019 #StopTheShock (by Laura Hatcher) Apr 24, 2019
HCBS
- Oct 4, 2024 Meet Jenny: Our New HCBS Policy Director! Oct 4, 2024
- Sep 5, 2024 #CareCantWait: Reflections from the Bus Tour (By Elena Hung) Sep 5, 2024
- Aug 27, 2024 What I Learned by Advocating with Little Lobbyists (by Anne Louis) Aug 27, 2024
- Aug 9, 2024 We Belong: Why Community Integration Matters Aug 9, 2024
- Aug 1, 2024 Know Your Rights: The Community Integration Mandate (by Jeneva Stone) Aug 1, 2024
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- Jun 21, 2024 Know Your Rights: The Olmstead Decision (by Jeneva Stone & Laura LeBrun Hatcher) Jun 21, 2024
- Apr 26, 2024 Because Care Can’t Wait! Apr 26, 2024
- May 31, 2023 Medicaid & IDEA--What's at Stake: Grace Dow (Massachusetts) May 31, 2023
- Dec 29, 2022 Thank You, Lois Curtis, Olmstead Hero (by Jeneva Stone) Dec 29, 2022
- Jul 28, 2022 When Your Life Depends on Your Zipcode (By Rob & Jeneva Stone) Jul 28, 2022
- May 19, 2022 Remembering Julie Beckett: Discovering Our Strength May 19, 2022
- May 13, 2022 Care Can't Wait: HCBS Now! (by Jamie Davis Smith & Rob Stone) May 13, 2022
- Apr 28, 2022 Pass the Better Care Better Jobs Act--We Need Home and Community-Based Services Now! (by Jeneva Stone) Apr 28, 2022
- Apr 7, 2022 A Good Life Depends on Home and Community-Based Services (by Cheryl Dougan & Renzo Dougan Viscardi) Apr 7, 2022
- Feb 17, 2022 Living the Life You Want: Self-Directed Services 101 (by Jeneva Stone) Feb 17, 2022
- Jan 27, 2022 My Twin Brother, Danny, Needed Better Home and Community-Based Services (by Brian Trapp) Jan 27, 2022
- Oct 29, 2021 Why We Must Eradicate HCBS Waiting Lists (by Carolyn Murray) Oct 29, 2021
- Oct 22, 2021 Home and Community-Based Services Are a Human Right (by Jeneva Stone) Oct 22, 2021
- Oct 11, 2021 An Open Letter to Senator Kyrsten Sinema Oct 11, 2021
- Sep 30, 2021 My Son’s Nurse Can’t Survive on What She’s Paid (by Kimberly Crawley) Sep 30, 2021
- Sep 2, 2021 Caregivers Need a Living Wage: Pass the Better Care Better Jobs Act Now! (by Elvina Scott) Sep 2, 2021
- Jul 20, 2021 Why I’m Fighting for Home and Community-Based Services: An Interview with Jen Reese Jul 20, 2021
- Jul 19, 2021 An Open Letter to Senator Mark Warner: Don't Leave Caregiving Out of the Infrastructure Bill (by Jill Jacobs) Jul 19, 2021
- Jul 15, 2021 Caregiving: Infrastructure of the Heart (by Sandra Joy Stein) Jul 15, 2021
- Jun 24, 2021 The Direct Care Workforce: The Infrastructure Our Families Need (An Interview with Ron Carlson by Jeneva Stone) Jun 24, 2021
- Jun 3, 2021 Caregiving Is Infrastructure (by Stacy Staggs) Jun 3, 2021
- Mar 25, 2021 Independence Can’t Wait: An Interview with Ande Kolp about Home & Community-Based Services Mar 25, 2021
- Feb 18, 2021 Rescuing Our Families: Home and Community-Based Services in COVID Relief (by Jeneva Stone) Feb 18, 2021
- Jul 23, 2020 Keeping Our Families Together: Home and Community-Based Services 101 (by Jeneva Stone) Jul 23, 2020
IDEA
- May 31, 2023 Medicaid & IDEA--What's at Stake: Grace Dow (Massachusetts) May 31, 2023
- May 31, 2023 Save IDEA: Aaron Holzmueller (Illinois) May 31, 2023
- May 30, 2023 Save Medicaid & IDEA: Ethan & Christy Judd (Virginia) May 30, 2023
- May 23, 2023 Save Medicaid & IDEA: Meghann & Miles Luczkowski (Pennsylvania) May 23, 2023
Journey with Jeneva
- Apr 18, 2024 Knowing How to Do All the Stuff: An Interview with Kelley Coleman (by Jeneva Stone) Apr 18, 2024
- Nov 10, 2022 Share the Journey with Jeneva: Matthew Plantz on the Importance of Community Inclusion Nov 10, 2022
- Jul 28, 2022 When Your Life Depends on Your Zipcode (By Rob & Jeneva Stone) Jul 28, 2022
- Feb 24, 2022 Share the Journey with Jeneva: Self-Direction & the Good Life with Alicia and Al Wopat Feb 24, 2022
- Feb 3, 2022 Share the Journey with Jeneva: Sherry Pickett Gets to the “Heart” of Advocacy Feb 3, 2022
- Jun 24, 2021 The Direct Care Workforce: The Infrastructure Our Families Need (An Interview with Ron Carlson by Jeneva Stone) Jun 24, 2021
- May 13, 2021 “Thought in Action”: Art & Advocacy with Angela Weddle May 13, 2021
- Apr 8, 2021 Share the Journey with Jeneva: Maya Brown-Zimmerman on the Independent Educational Evaluation Apr 8, 2021
- Mar 25, 2021 Independence Can’t Wait: An Interview with Ande Kolp about Home & Community-Based Services Mar 25, 2021
- Mar 11, 2021 Poetry & Autistic Advocacy: An Interview with Nathan Spoon Mar 11, 2021
- Mar 4, 2021 Share the Journey with Jeneva: Lauren Shillinger on Epilepsy Advocacy Mar 4, 2021
- Dec 23, 2020 Sharing the Journey with Jeneva: Amy Silverman & Sophie Stern on Journalism & Disability Representation Dec 23, 2020
- Dec 16, 2020 Sharing the Journey with Jeneva: Loving Anian with Meeka Caldwell Dec 16, 2020
- Aug 27, 2020 Sharing the Journey with Jeneva: Staying Visible with Alice Wong Aug 27, 2020
- Jul 2, 2020 Sharing the Journey with Jeneva: Jamie Davis Smith on Writing About Children with Disabilities Jul 2, 2020
- Apr 23, 2020 Sharing the Journey with Jeneva: Moving Forward with Ken Capone Apr 23, 2020
- Apr 14, 2020 Sharing the Journey with Jeneva: Samantha McGovern COVID-19 Thoughts Apr 14, 2020
- Feb 27, 2020 Sharing the Journey with Jeneva: Liz Randolph on When a Feeding Tube Is Forever (And That’s OK) Feb 27, 2020
- Feb 6, 2020 Sharing the Journey with Jeneva: Laura Robeson on Medicaid Expansion Feb 6, 2020
Know Your Rights
- Aug 1, 2024 Know Your Rights: The Community Integration Mandate (by Jeneva Stone) Aug 1, 2024
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- Jun 21, 2024 Know Your Rights: The Olmstead Decision (by Jeneva Stone & Laura LeBrun Hatcher) Jun 21, 2024
LL Statements
- Dec 27, 2021 Dear Josephine Dec 27, 2021
- Apr 30, 2019 The Power of Medicaid (by Jeneva and Robert Stone) Apr 30, 2019
- Sep 30, 2018 Protect Children with Complex Medical Needs and Disabilities: Little Lobbyists Oppose Appointing Judge Kavanaugh to the Supreme Court (STATEMENT) Sep 30, 2018
- Apr 19, 2018 Little Lobbyists Statement on Short Term Limited Duration Insurance CMS-9924-P (STATEMENT) Apr 19, 2018
- Oct 9, 2017 Little Lobbyists’ Letter to U.S. Senators on the Graham-Cassidy health care repeal bill Oct 9, 2017
Legislation
- May 13, 2022 Care Can't Wait: HCBS Now! (by Jamie Davis Smith & Rob Stone) May 13, 2022
Medicaid
- Feb 3, 2025 Saving Medicaid: What You Can Do (by Jeneva Stone) Feb 3, 2025
- Sep 5, 2024 #CareCantWait: Reflections from the Bus Tour (By Elena Hung) Sep 5, 2024
- Aug 9, 2024 We Belong: Why Community Integration Matters Aug 9, 2024
- Aug 1, 2024 Know Your Rights: The Community Integration Mandate (by Jeneva Stone) Aug 1, 2024
- Jun 22, 2024 25 Years of Olmstead Rights: James & Jenny McLelland’s Story Jun 22, 2024
- May 2, 2024 Historic News: Prohibiting Disability Discrimination in Federal Programs! (by Jeneva Stone) May 2, 2024
- Sep 28, 2023 What Is “Section 504”? Disability Rights 101 (by Jeneva Stone) Sep 28, 2023
- May 31, 2023 Medicaid & IDEA--What's at Stake: Grace Dow (Massachusetts) May 31, 2023
- May 30, 2023 Save Medicaid & IDEA: Ethan & Christy Judd (Virginia) May 30, 2023
- May 23, 2023 Save Medicaid & IDEA: Meghann & Miles Luczkowski (Pennsylvania) May 23, 2023
- Sep 29, 2022 The ENFit Transition: Advice and Information for Families (by Jeneva Stone) Sep 29, 2022
- Sep 23, 2022 When No One Consults the Disability Community: The Unfit Transition to ENFit (by Sandra Joy Stein) Sep 23, 2022
- Apr 7, 2022 A Good Life Depends on Home and Community-Based Services (by Cheryl Dougan & Renzo Dougan Viscardi) Apr 7, 2022
- Aug 26, 2021 Medicaid 101: Human Infrastructure & Civil Rights (by Jeneva Stone & Laura Hatcher) Aug 26, 2021
- Feb 25, 2021 Medicaid Block Grants Betray Families Like Mine (by Mallorie Hatcher) Feb 25, 2021
- Sep 3, 2020 Spelling It Out: The ADA and the Right to Community (by Bob Williams) Sep 3, 2020
- Aug 20, 2020 What Health Care Means to Me (by Jeneva Stone) Aug 20, 2020
- Feb 24, 2020 Medicaid: A Blanket Statement (by Cristina Perez Edmunds) Feb 24, 2020
- Oct 24, 2019 In Texas, the ACA and Medicaid Saved my Child's Life (by Gillian Quinn) Oct 24, 2019
- Apr 30, 2019 The Power of Medicaid (by Jeneva and Robert Stone) Apr 30, 2019
- Apr 26, 2018 What Does Medicaid Mean to You? (by Mark Morrison) Apr 26, 2018
News
- Oct 4, 2024 Meet Jenny: Our New HCBS Policy Director! Oct 4, 2024
- Apr 13, 2023 Inclusive White House Easter Egg Fun! Apr 13, 2023
On Capitol Hill
- Apr 26, 2024 Because Care Can’t Wait! Apr 26, 2024
- Dec 30, 2021 Little Lobbyists' Top 10 of 2021 Dec 30, 2021
- Mar 25, 2021 Thank you, Sister Simone (by Laura LeBrun Hatcher) Mar 25, 2021
Our Voice is Our Power!
- Nov 4, 2024 More Than a Treat – Little Lobbyists Kids at the White House for Hallo-read! Nov 4, 2024
- Apr 23, 2024 Action Alert: Make Airlines Accountable to Disabled Travelers! (by Jamie Davis Smith) Apr 23, 2024
- Nov 6, 2023 Be a Hero: In Memory of Ady Barkan (by Elena Hung) Nov 6, 2023
- Mar 9, 2023 Judy Heumann, Rolling Warrior Mar 9, 2023
Pandemic
- Feb 3, 2023 How Do You Stay Prepared? Let’s Talk (by Jeneva Stone) Feb 3, 2023
- Mar 21, 2022 World Down Syndrome Day: A Message of Hope (by Liz Zogby & Lauren Ochalek) Mar 21, 2022
- Mar 11, 2022 Making the Case for Masking in Schools Is Difficult & Necessary (by Peter Witzler & Keir Bickerstaffe) Mar 11, 2022
- Mar 3, 2022 What Does “Back to Normal” Mean for Schools? (by Agata Szczeszak-Brewer) Mar 3, 2022
- Jan 13, 2022 Saying, “We Need to Keep Schools Open” Is Not a Plan (by Stacy Staggs) Jan 13, 2022
- Oct 15, 2021 The Anxious Wait for Covid-19 Vaccinations for Our Children (by Angela Eilers) Oct 15, 2021
- Sep 9, 2021 Wear a Mask at School! Protect Our Children! Sep 9, 2021
- Aug 12, 2021 Why I’m Suing Gov. DeSantis Over School Mask Mandates (by Kristen Thompson) Aug 12, 2021
- May 20, 2021 How to Talk to Family & Friends: Keeping Kids Under 12 Safe from Covid-19 (by Angela Eilers) May 20, 2021
- Feb 18, 2021 Rescuing Our Families: Home and Community-Based Services in COVID Relief (by Jeneva Stone) Feb 18, 2021
- Feb 16, 2021 Protect Our Kids: Vaccinate Family Caregivers (by Jeneva Stone) Feb 16, 2021
- Sep 17, 2020 Our Children Have Been Robbed (by Erin Gabriel) Sep 17, 2020
- Aug 11, 2020 COVID-19 Back-to-School Decisions ... Am I More Terrified or Furious? (by Laura LeBrun Hatcher) Aug 11, 2020
- Aug 6, 2020 Perspectives: Back to School, Covid Edition (by Maya Brown-Zimmerman, Cassie Walker & Angie Voyles) Aug 6, 2020
- Jul 21, 2020 Our Kids Won't Just "Get Over It": An Open Letter Missouri's Governor (by Julie Kauffman) Jul 21, 2020
- Jul 16, 2020 Wear a Mask: Don’t Wager on My Son’s Life (by Gabriela Mafi) Jul 16, 2020
- Jun 21, 2020 We're In This Together: Peter Witzler on Epic Summers Jun 21, 2020
- Apr 14, 2020 Sharing the Journey with Jeneva: Samantha McGovern COVID-19 Thoughts Apr 14, 2020
- Mar 5, 2020 A Medical Mom's Top 10 Tips to REALLY Wash Your Hands and Fight Germs (by Lori Hensler) Mar 5, 2020
Reflections
- Nov 4, 2024 More Than a Treat – Little Lobbyists Kids at the White House for Hallo-read! Nov 4, 2024
- Nov 3, 2024 Unraveling Bias in Healthcare: We Need NICU Advocates (by Anne Louis) Nov 3, 2024
- Nov 6, 2023 Be a Hero: In Memory of Ady Barkan (by Elena Hung) Nov 6, 2023
- Jul 17, 2023 Vacations Can Be Accessible and Enjoyable (by Grace Dow) Jul 17, 2023
- Mar 9, 2023 Judy Heumann, Rolling Warrior Mar 9, 2023
- Feb 3, 2023 How Do You Stay Prepared? Let’s Talk (by Jeneva Stone) Feb 3, 2023
- Dec 29, 2022 Thank You, Lois Curtis, Olmstead Hero (by Jeneva Stone) Dec 29, 2022
- Aug 4, 2022 Supporting Your Disabled Child In Adulthood (by Grace Dow) Aug 4, 2022
- Jun 29, 2022 Little Lobbyists Is 5! Our Story Is All About Social Justice Jun 29, 2022
- May 19, 2022 Remembering Julie Beckett: Discovering Our Strength May 19, 2022
- Mar 21, 2022 World Down Syndrome Day: A Message of Hope (by Liz Zogby & Lauren Ochalek) Mar 21, 2022
- Mar 3, 2022 What Does “Back to Normal” Mean for Schools? (by Agata Szczeszak-Brewer) Mar 3, 2022
- Mar 1, 2022 Disability Day of Mourning (by Elena Hung) Mar 1, 2022
- Jan 27, 2022 My Twin Brother, Danny, Needed Better Home and Community-Based Services (by Brian Trapp) Jan 27, 2022
- Dec 30, 2021 Little Lobbyists' Top 10 of 2021 Dec 30, 2021
- Dec 27, 2021 Dear Josephine Dec 27, 2021
- Sep 23, 2021 Coping During Difficult Times: Safety, Control, Connection (by Jeneva Stone) Sep 23, 2021
- Aug 19, 2021 Why My Family Says “Disabled” Instead of “Special Needs” (by Jeneva Stone) Aug 19, 2021
- Jul 15, 2021 Caregiving: Infrastructure of the Heart (by Sandra Joy Stein) Jul 15, 2021
- Jul 1, 2021 What the ACA Means To Me (by Angela Carpenter Gildner) Jul 1, 2021
- May 6, 2021 What Does Advocacy Mean to You? (by Jeneva Stone) May 6, 2021
- Apr 29, 2021 Using Our Words: Being a Better Disability Ally (by Jeneva Stone) Apr 29, 2021
- Mar 25, 2021 Thank you, Sister Simone (by Laura LeBrun Hatcher) Mar 25, 2021
- Mar 18, 2021 Why I Fear for My Child’s Safety (by Amy Koné) Mar 18, 2021
- Jan 7, 2021 This Is What Democracy Looks Like Jan 7, 2021
- Dec 3, 2020 Keeping Spirits Bright with Little Lobbyists: Decorations, Nostalgia & Advocacy with Free Printable Holiday Cards Dec 3, 2020
- Nov 24, 2020 Preventing Trauma at School with the “Keeping All Students Safe Act” (by Daya Chaney Webb) Nov 24, 2020
- Oct 19, 2020 My Father. My Son. An ACA Diary. (by Sandra Joy Stein) Oct 19, 2020
- Oct 1, 2020 So You Want to Save Health Care: Here’s How (by Jeneva Stone) Oct 1, 2020
- Sep 10, 2020 I Love the Sound of My Daughter's Voice (by Stacy Staggs) Sep 10, 2020
- Sep 3, 2020 Spelling It Out: The ADA and the Right to Community (by Bob Williams) Sep 3, 2020
- Aug 20, 2020 What Health Care Means to Me (by Jeneva Stone) Aug 20, 2020
- Jul 29, 2020 Threats to our Health Care: Reflections Three Years Later (by Elena Hung) Jul 29, 2020
- Jul 9, 2020 Gifts I Am Sharing with My Son (by Rico Winston) Jul 9, 2020
- Jun 21, 2020 We're In This Together: Peter Witzler on Epic Summers Jun 21, 2020
- Feb 27, 2020 Sharing the Journey with Jeneva: Liz Randolph on When a Feeding Tube Is Forever (And That’s OK) Feb 27, 2020
- Feb 11, 2020 Four Little Lobbyists Moms Share State of the Union Experience Feb 11, 2020
- Feb 3, 2020 Be Louder: One Year Later (by Sydney Aleshire) Feb 3, 2020
- Jan 30, 2020 Wheelchairs Aren’t a Second-best Life (by Maya Brown-Zimmerman) Jan 30, 2020
- Nov 21, 2019 My Daughter Would Love To Be Your Friend. But Please Don’t Make Her a Prop (by Josh Fyman) Nov 21, 2019
- Sep 5, 2019 I Wish I Were a Battery (by Jeneva Burroughs Stone) Sep 5, 2019
- Aug 28, 2019 To my son, on the eve of his first day of kindergarten (by Ali Chandra) Aug 28, 2019
- Jun 26, 2019 Any of Us Could Be a Refugee (by Jeneva Burroughs Stone) Jun 26, 2019
- May 22, 2019 Affordable Healthcare is the Bedrock of American Self-Reliance (By Jeneva Stone) May 22, 2019
- May 9, 2019 From Parent to Ally: Listening to the Experts on Autism (by Daya Chaney Webb) May 9, 2019
- Mar 21, 2019 Confronting my own ableism as the parent of a child with complex medical needs (by Tasha Nelson) Mar 21, 2019
- Feb 21, 2019 Keep Health Care in Mind When You Vote (by Jodi Aleshire) Feb 21, 2019
- Jan 31, 2019 January (by Tasha Nelson) Jan 31, 2019
- Jan 22, 2019 My Son is in Hospice and his Healthcare Matters (by Tonya Prifogle) Jan 22, 2019
- Jan 13, 2019 Speaker of the House (by Stacy Staggs) Jan 13, 2019
- Oct 7, 2018 Why I’m Speaking Up (by Stacy Staggs) Oct 7, 2018
- Sep 1, 2018 A Book that Shaped Me: Best Friends on Wheels by Debra Shirley (by Ben Smith, 5th Grade) Sep 1, 2018
- Jun 15, 2018 Celebrating Father's Day (by Josh Fyman) Jun 15, 2018
- Jun 7, 2018 You're The One You've Been Waiting For (by Laura Hatcher) Jun 7, 2018
- Mar 10, 2018 Spread the Word to End the Word (by Laura Hatcher) Mar 10, 2018
- Jan 15, 2018 I Chose Life (by Elena Hung) Jan 15, 2018
- Jan 15, 2018 Anonymity (by Mark Morrison) Jan 15, 2018
State Advocates
- Mar 21, 2022 World Down Syndrome Day: A Message of Hope (by Liz Zogby & Lauren Ochalek) Mar 21, 2022
- Mar 11, 2022 Making the Case for Masking in Schools Is Difficult & Necessary (by Peter Witzler & Keir Bickerstaffe) Mar 11, 2022
- Feb 24, 2022 Share the Journey with Jeneva: Self-Direction & the Good Life with Alicia and Al Wopat Feb 24, 2022
- Feb 3, 2022 Share the Journey with Jeneva: Sherry Pickett Gets to the “Heart” of Advocacy Feb 3, 2022
- Jan 19, 2022 Support Seizure Safe Schools NOW! (by Lauren Shores Shillinger) Jan 19, 2022
- Aug 12, 2021 Why I’m Suing Gov. DeSantis Over School Mask Mandates (by Kristen Thompson) Aug 12, 2021
- Mar 4, 2021 Share the Journey with Jeneva: Lauren Shillinger on Epilepsy Advocacy Mar 4, 2021
- Feb 25, 2021 Medicaid Block Grants Betray Families Like Mine (by Mallorie Hatcher) Feb 25, 2021
- Sep 24, 2020 Little Lobbyists Pennsylvania Endorses U.S. House of Representatives Candidates (by Erin Gabriel) Sep 24, 2020
- Jul 21, 2020 Our Kids Won't Just "Get Over It": An Open Letter Missouri's Governor (by Julie Kauffman) Jul 21, 2020
- Apr 23, 2020 Sharing the Journey with Jeneva: Moving Forward with Ken Capone Apr 23, 2020
- Feb 6, 2020 Sharing the Journey with Jeneva: Laura Robeson on Medicaid Expansion Feb 6, 2020
- Jan 22, 2020 Accessible Restrooms aren't a "Special" Need. (by Laura Hatcher) Jan 22, 2020
- Apr 1, 2019 From Parent, to Advocate, to Leader (by Jessica Fox) Apr 1, 2019
The ACA
- Dec 3, 2024 A Tribute to Congresswoman Jennifer Wexton: A Legacy of Compassionate and Inclusive Leadership (by Tasha Nelson) Dec 3, 2024
- Mar 31, 2022 The ACA Is Here to Stay--So Let's Improve It (by Laura Hatcher) Mar 31, 2022
- Jul 1, 2021 What the ACA Means To Me (by Angela Carpenter Gildner) Jul 1, 2021
- Jun 22, 2021 A Reflection on the Healing Power of the Affordable Care Act (by Peter Witzler) Jun 22, 2021
- Mar 25, 2021 Thank you, Sister Simone (by Laura LeBrun Hatcher) Mar 25, 2021
- Dec 10, 2020 Open Enrollment: Why the ACA Matters (by Jeneva Stone) Dec 10, 2020
- Nov 17, 2020 November: A Time for Epilepsy & ACA Awareness (by Laura Leeman) Nov 17, 2020
- Nov 12, 2020 We Deserve Better: Why I Support the ACA (by Jamie Davis Smith) Nov 12, 2020
- Nov 9, 2020 Why I’m a Member of Little Lobbyists / ¿Por qué soy miembro de Little Lobbyists? (by/por Walewska Watkins) Nov 9, 2020
- Nov 5, 2020 Before the ACA My Health Insurance Was Junk (by Amanda Upton) Nov 5, 2020
- Nov 2, 2020 Walk Away from Bullies, Pull Up a Chair & Listen to My Family (by Erin Raffety) Nov 2, 2020
- Oct 29, 2020 How to Turn Your Friends & Family into #HealthCareVoters (by Jeneva Stone) Oct 29, 2020
- Oct 22, 2020 Have a Heart: Save the Affordable Care Act (by Angela Eilers) Oct 22, 2020
- Oct 19, 2020 My Father. My Son. An ACA Diary. (by Sandra Joy Stein) Oct 19, 2020
- Oct 10, 2020 What’s Truly “Pro-Life”? The Affordable Care Act (by Jessica Sharp Fox) Oct 10, 2020
- Oct 2, 2020 I Oppose Amy Coney Barrett’s Nomination to the Supreme Court (by Shannon Striner) Oct 2, 2020
- Oct 1, 2020 So You Want to Save Health Care: Here’s How (by Jeneva Stone) Oct 1, 2020
- Sep 24, 2020 Health Care Is a Human Right: Save the Affordable Care Act (by Lori Hensler) Sep 24, 2020
- Sep 17, 2020 Our Children Have Been Robbed (by Erin Gabriel) Sep 17, 2020
- Aug 20, 2020 What Health Care Means to Me (by Jeneva Stone) Aug 20, 2020
- Jul 29, 2020 Threats to our Health Care: Reflections Three Years Later (by Elena Hung) Jul 29, 2020
- Jun 25, 2020 Owning Our Lives: How the ACA Freed Us from Employer-based Health Care (by Angela Eilers) Jun 25, 2020
- Oct 24, 2019 In Texas, the ACA and Medicaid Saved my Child's Life (by Gillian Quinn) Oct 24, 2019
- Jul 8, 2019 Texas v. U.S. – EVERY American's Health Care is On the Line (by Laura Leeman) Jul 8, 2019
- May 22, 2019 Affordable Healthcare is the Bedrock of American Self-Reliance (By Jeneva Stone) May 22, 2019
- Feb 27, 2019 A Vote for Readler is a Vote Against People with Pre-Existing Conditions (by Maya Brown-Zimmerman) Feb 27, 2019
- Nov 6, 2018 Of Mickey Mouse and Congressmen (by Sandra Joy Stein) Nov 6, 2018
- Oct 27, 2018 “If there is anything you need, please let us know” (by Kate Green) Oct 27, 2018
- Oct 21, 2018 Every Child Deserves a Chance (by Amy & Erik Boyle) Oct 21, 2018
- Oct 14, 2018 Don't Crowd-Fund Health Care; Vote For It (by Tasha Nelson) Oct 14, 2018
- Apr 19, 2018 Little Lobbyists Statement on Short Term Limited Duration Insurance CMS-9924-P (STATEMENT) Apr 19, 2018
VOTE!
- Jul 25, 2024 Health Care Spotlight: Kamala Harris Jul 25, 2024
- Dec 4, 2022 Why Carly Bloomingdale Is a Little Lobbyists Voter in Georgia! Dec 4, 2022
- Nov 4, 2022 Take the Little Lobbyists Voter Pledge! Laura & Victor Leeman Did in Texas! Nov 4, 2022
- Nov 4, 2022 Take the Little Lobbyists Voter Pledge! Sarah & Gabbie May-Seward Did in Michigan! Nov 4, 2022
- Nov 3, 2022 Take the Little Lobbyists Voter Pledge! The Witzler Family Did in Maryland! Nov 3, 2022
- Nov 1, 2022 Take the Little Lobbyists Voter Pledge! Becki & Izabella Ucello Did in Missouri! Nov 1, 2022

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