Meet the Little Lobbyists

We are proud to introduce some awesome children with complex medical needs and disabilities from around the country. These are kids who love to play with toys, learn with friends, spend time with their families, and bring light, joy, and laughter into the world. Below are their stories, told by those who love them, about the access to health care, education, and community inclusion that makes their lives possible. If you'd like to share the story of your child with complex medical needs and disabilities with us, please visit our story form.

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Featured

Xiomara, MD

Meet Xiomara. After spending the first five months of her life in the hospital, Xiomara is eager to explore the outside world.

Timmy, MD

Meet Timmy. Timmy is a newly minted kindergarten graduate who loves robots and pirates, plays on a local soccer team, and dreams of growing up to become a police officer, firefighter, “ambulance man,” garbage collector, or robot repairman.

Anna, VA

Meet Anna. She is a typical 5 year old in many ways. She loves to play with her brothers. She loves Play-Doh and to play with her dolls. She is very into princesses right now. Anna loves to sing along to songs from Disney movies.

Emma, NC

Meet Emma. Emma enjoys playing with balls, blocks and exploring outside in the grass.

Aadi, NC

Meet Aadi. Aadi was born 2 months premature with cerebral palsy.

Claire, AL

Meet Claire. She loves her dogs and meeting people. A social butterfly with no fear. Lots of hugging for everyone.

Simon, MD

Meet Simon. He loves music, Disney movies, and playing Mario Kart with his big sister.

Gabrielle, MI

Meet Gabbie. She loves animals, going to school, chatting with friends, and singing in choir.

Jack, IL

Meet Jack. He loves Mickey Mouse, watching bubbles, and being read books.

Myka, CA

Meet Myka. She loves the Girl Scouts, ice skating, playing with her friends.

Jack, VA

Meet Jack. He loves all things science related, especially weather and storms

Caroline, VA

Meet Caroline. She loves books about dinosaurs, and her favorite movies are Tangled and Beauty and the Beast.

Teddy, age 2, KY

Meet Teddy. He loves music and reading books – front to back!

Victor, TX

Meet Victor. He loves going to school with his friends and playing Miracle League Baseball on the weekends.

Louisa, MI

Meet Louisa, she loves playing on the swings, going for wagon rides with her brother, reading stories, playing games, listening to music, and everything other kids her age like to do!

Ethan, WV

Meet Ethan. He loves piano, horseback riding, going to church, and spending time with his family and friends.

Meet Esther, AR

Meet Esther. Estie sings in the choir, is in the chess club, and is a straight A student. She speaks to others about what it’s like living with her disability and hopes to be a motivational speaker some day.

Louie, LA

Meet Louie. He’s a bright, funny, sweet kid who's always quick with a hug.

Ayla, MA

Meet Ayla. She’s a strong, happy, and determined little girl whose smile just melts your heart.

Elliott, age 2, MD

Meet Elliott. He likes to help make dinner by trying everything.

Josephine, VA

Meet Josephine. She loves books, big trucks, a great playlist, and bubbles.

Gigi, WI

Meet Gigi. She loves to play outside, draw with sidewalk chalk, and ride her tricycle.

Franklin, KS

Meet Franklin. Every Sunday he likes to sit in the front row of church so he can shake everyone’s hand.

Ethan, NJ

Meet Ethan. He loves his family, fireflies, and gathering stick bouquets for his mom on hikes.

Dallas, AL

Meet Dallas. He loves music videos, camp, and baseball.

Mila & Felo, Texas

Meet Mila & Felo, miracle twins and best friends who’ve come a long way since their early start in the NICU.

Claire, Washington D.C.

Meet Claire. She loves ice cream and laughing with her siblings.

Ryan, PA

Meet Ryan. He’s smart, sweet, funny, and social media savvy.

Christopher, DE

Meet Christopher. He loves to be out in his community, living life to the fullest.

Jillian, WI

Meet Jillian. When she grows up, she wants to be a doctor, nurse, astronaut, teacher, music therapist, and work in the Ronald McDonald house.

But wait, there's more!

The above profiles are just a tiny sample of the stories we have collected of Little Lobbyists kids all over the country. Check back soon because we are adding more stories all the time! We're also constantly looking for more stories to share. If you care for a dependent with complex medical needs and disabilities and would like to make sure their concerns are represented by the policy makers whose job it is to protect them, we invite you to share their story with us here.