Small Voices, BIG Impact: Little Lobbyists Takes on Harrisburg!
Cole's mom writes about the electric mood at the Harrisburg, PA, stop on the "Sick of It! Fix Health Care Now" bus tour.
The Rehab Act (as it’s often called) is the foundation for civil rights for people with disabilities in the U.S., and at its heart is Section 504, which prohibits discrimination on the basis of disability “under any program or activity receiving Federal financial assistance.”
I have Cerebral Palsy and I was born prematurely in India. I rely on a walker and a wheelchair for my mobility.
I had a diffuse and catastrophic birth brain injury, which resulted in my disabilities.
Ethan was born with congenital myasthenia syndrome, which affects the communication between his brain and muscles, leading him to have low muscle tone. He also had dislocated and subluxated hips, so he uses a wheelchair for long distance and for greater independence.
Thomas is sixteen. He’s a happy guy who loves Star Wars, pop music and root beer. He has a hello and goodbye for everyone and everything - “So long Target!”
Miles is finishing up 2nd grade. He loves music, especially theme songs! If there’s a device nearby with access to the internet, Miles will find his favorite videos on YouTube.
Judy Heumann has been called the mother of the disability rights movement, and her life reflected that. She was kind, warm, encouraging to Little Lobbyists families, and, especially to our children.
An hour later, disaster struck. My medically complex and disabled child was miles away and I didn’t know what to do.
HCBS, including professional caregiving like skilled home nursing and direct support, help our kids stay safe at home and school and allow us – their parents and caregivers – to go to work, care for our other children, and provide for our families.
Had Rob been born 15 years earlier, he would have been automatically institutionalized. Rob and my family owe a huge debt of gratitude to Lois Curtis, the “L.C.” in the Olmstead case.
Matthew Plantz is a lifelong advocate for individuals with intellectual and developmental disabilities at the local, state, and federal level.
Many other families found out this fall when they began receiving mixed lots of supplies: ENFit and their usual. This is creating mind-boggling problems for tens of thousands of American families.