DC Week of Action (and Joy)
Little Lobbyists' intern Grace Heuer writes about taking the fight to Capitol Hill...and rethinking what advocacy can look like.
Save Medicaid & IDEA: Cindy & Thomas Hammerquist
Thomas is sixteen. He’s a happy guy who loves Star Wars, pop music and root beer. He has a hello and goodbye for everyone and everything - “So long Target!”
Save Medicaid & IDEA: Meghann & Miles Luczkowski
Miles is finishing up 2nd grade. He loves music, especially theme songs! If there’s a device nearby with access to the internet, Miles will find his favorite videos on YouTube.
Judy Heumann, Rolling Warrior
Judy Heumann has been called the mother of the disability rights movement, and her life reflected that. She was kind, warm, encouraging to Little Lobbyists families, and, especially to our children.
How Do You Stay Prepared? Let’s Talk
An hour later, disaster struck. My medically complex and disabled child was miles away and I didn’t know what to do.
The Better Care Better Jobs Act: A Light of Hope for Our Families
HCBS, including professional caregiving like skilled home nursing and direct support, help our kids stay safe at home and school and allow us – their parents and caregivers – to go to work, care for our other children, and provide for our families.
Thank You, Lois Curtis, Olmstead Hero
Had Rob been born 15 years earlier, he would have been automatically institutionalized. Rob and my family owe a huge debt of gratitude to Lois Curtis, the “L.C.” in the Olmstead case.
Share the Journey with Jeneva: Matthew Plantz on the Importance of Community Inclusion
Matthew Plantz is a lifelong advocate for individuals with intellectual and developmental disabilities at the local, state, and federal level.
The ENFit Transition: Advice and Information for Families
Many other families found out this fall when they began receiving mixed lots of supplies: ENFit and their usual. This is creating mind-boggling problems for tens of thousands of American families.
When No One Consults the Disability Community: The Unfit Transition to ENFit
The response came quickly, informing me that the manufacturer is no longer making the INF0500-A, the product we have used for over a decade when my son had surgery to place a gastrostomy tube and we learned a whole new vocabulary.
Covid Isn’t Over: Disabled Lives Are Still at Stake
As I’ve reflected on this experience, I am grateful for vaccines and effective treatments for Covid. But it is also clear that hospitals are simply OVER Covid and they are OVER dealing with disabled people who have it.
When Your Life Depends on Your Zipcode (By Rob & Jeneva Stone)
Rob has a rare disease, dystonia 16. Due its complications, Rob uses a wheelchair to get around, uses a tracheostomy to assist his breathing, takes his food through a gastrostomy/jejunal tube, and needs a lot of assistance to use his arms or hands.
Remembering Julie Beckett: Discovering Our Strength
For three long years, Julie fought the state and federal governments, seeking a way to bring Katie home, where she would be surrounded by love and where she would ultimately thrive.