DC Week of Action (and Joy)
Little Lobbyists' intern Grace Heuer writes about taking the fight to Capitol Hill...and rethinking what advocacy can look like.
43 articles
Saving Medicaid: What You Can Do (by Jeneva Stone)
Now Medicaid is at risk for everyone. Did you know that 1 in 5 persons in the U.S. are enrolled in Medicaid?
Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone)
Little Lobbyists Isra’El Winston and his dad Rico were tapped to share their story. I wanted to know more about how they got involved, what they learned, and how this advocacy experience changed them.
Know Your Rights: The Community Integration Mandate
Did you know that the Civil Rights Act of 1964 does not ensure civil rights for people with disabilities?
Knowing How to Do All the Stuff: An Interview with Kelley Coleman
Her voice was like the spirit guide to parenting I’ve always wanted, telling me how I could do all the hard things, making suggestions and holding my hand.
What Is “Section 504”? Disability Rights 101 (by Jeneva Stone)
The Rehab Act (as it’s often called) is the foundation for civil rights for people with disabilities in the U.S., and at its heart is Section 504, which prohibits discrimination on the basis of disability “under any program or activity receiving Federal financial assistance.”
How Do You Stay Prepared? Let’s Talk
An hour later, disaster struck. My medically complex and disabled child was miles away and I didn’t know what to do.
Thank You, Lois Curtis, Olmstead Hero
Had Rob been born 15 years earlier, he would have been automatically institutionalized. Rob and my family owe a huge debt of gratitude to Lois Curtis, the “L.C.” in the Olmstead case.
Share the Journey with Jeneva: Matthew Plantz on the Importance of Community Inclusion
Matthew Plantz is a lifelong advocate for individuals with intellectual and developmental disabilities at the local, state, and federal level.
The ENFit Transition: Advice and Information for Families
Many other families found out this fall when they began receiving mixed lots of supplies: ENFit and their usual. This is creating mind-boggling problems for tens of thousands of American families.
Covid Isn’t Over: Disabled Lives Are Still at Stake
As I’ve reflected on this experience, I am grateful for vaccines and effective treatments for Covid. But it is also clear that hospitals are simply OVER Covid and they are OVER dealing with disabled people who have it.
When Your Life Depends on Your Zipcode (By Rob & Jeneva Stone)
Rob has a rare disease, dystonia 16. Due its complications, Rob uses a wheelchair to get around, uses a tracheostomy to assist his breathing, takes his food through a gastrostomy/jejunal tube, and needs a lot of assistance to use his arms or hands.
Pass the Better Care Better Jobs Act--We Need Home and Community-Based Services Now! (by Jeneva Stone)
I wanted a good life for Rob: to live with dignity and respect in his community, to attend the public schools and to participate in the same activities that other kids did.