DC Week of Action (and Joy)
Little Lobbyists' intern Grace Heuer writes about taking the fight to Capitol Hill...and rethinking what advocacy can look like.
Care Can't Wait: HCBS Now! (by Jamie Davis Smith & Rob Stone)
Home and Community-Based Services give me control of my own life. I can live where I want. My home care staff help me do the things I want to do. Like go to art classes and run my own art website.
End HCBS Waitlists: Pass the Better Care Better Jobs Act Now! (by Lisa Wesel)
I’m tired of begging for crumbs. That’s what people with disabilities and their families do – we beg for scraps of funding from our state and federal governments.
Pass the Better Care Better Jobs Act--We Need Home and Community-Based Services Now! (by Jeneva Stone)
I wanted a good life for Rob: to live with dignity and respect in his community, to attend the public schools and to participate in the same activities that other kids did.
Masks Keep Travel and Communities Safe and Accessible (by Katie Harmon)
Our family embraces everything about each of my kids–including disability, which we view as just another part of life and parenthood!
Making the Case for Masking in Schools Is Difficult & Necessary (by Peter Witzler & Keir Bickerstaffe)
As the great Congressman John Lewis said, "Do not get lost in a sea of despair. Be hopeful, be optimistic. Our struggle is not the struggle of a day, a week, a month, or a year, it is the struggle of a lifetime. Never, ever be afraid to make some noise and get in good trouble, necessary trouble."
Disability Day of Mourning
I am here today to honor and remember those in our community who have died at the hands of their parents or caregivers.
Share the Journey with Jeneva: Self-Direction & the Good Life with Alicia and Al Wopat
SDAN has become a voice for participants and their families to ensure that participant choice and control is the mantra in Maryland, and that paid family support is respected and continues to be an option.
Living the Life You Want: Self-Directed Services 101
Because institutions and nursing homes haven’t gone away, and traditional providers are often struggling to make their own programs more flexible and community-based, there are lots of voices clamoring to be heard in state government deliberations.
Share the Journey with Jeneva: Sherry Pickett Gets to the “Heart” of Advocacy
We had a high school student from Louisville who had a heart attack on school grounds and was given CPR and he survived. This student testified before the Education Committee.
My Twin Brother, Danny, Needed Better Home and Community-Based Services (by Brian Trapp)
Danny had cerebral palsy and intellectual disabilities. He lived at home with us until he was 24, until my mother did not have enough help to provide the 24/7 care he needed.
Letter From the Disability Community to CDC Director Rochelle Walensky
Together we represent millions of people with disabilities, patients, and people with chronic illnesses across the United States, and we are extremely concerned by your comments.
Dear Josephine
Even in serious situations, she brought joy with her — dressing you up in the most adorable tiny pink Doc Martens, trick-or-treating in the Senate, celebrating victories small and large. She kept in touch. She always showed up.