Small Voices, BIG Impact: Little Lobbyists Takes on Harrisburg!
Cole's mom writes about the electric mood at the Harrisburg, PA, stop on the "Sick of It! Fix Health Care Now" bus tour.
Ian's Story: How the Medicaid Health Insurance Premium Payment Program Saves Lives
The Medicaid Health Insurance Premium Payment Program backs up our private insurance to keep Ian safe and thriving.
What Trump's First 100 Days Mean for Medically Complex Children and Their Families
Trump's first hundred days are threatening medical research; critical programs children and families rely upon for survival; and continued access to medical supplies, equipment, and medications.
Saving Medicaid: What You Can Do (by Jeneva Stone)
Now Medicaid is at risk for everyone. Did you know that 1 in 5 persons in the U.S. are enrolled in Medicaid?
A Tribute to Congresswoman Jennifer Wexton: A Legacy of Compassionate and Inclusive Leadership (by Tasha Nelson)
Her unwavering dedication to healthcare, children with complex medical needs and disabilities, and families like mine has left an indelible mark, and it’s an honor to share just a glimpse of the profound impact she has made.
#CareCantWait: Reflections from the Bus Tour (By Elena Hung)
The "Care on Tour" wound its way through nine cities in seven states.
From Books to Belonging (by Alison Chandra)
When I walked into the room that day, my first ever visit to the White House, I thought I was there to advocate for my son, who, with multiple severe heart defects, a rare congenital disease, and a neurodivergent brain, certainly ‘belonged’ in a gathering of disabled people.
Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone)
Little Lobbyists Isra’El Winston and his dad Rico were tapped to share their story. I wanted to know more about how they got involved, what they learned, and how this advocacy experience changed them.
Know Your Rights: The Community Integration Mandate
Did you know that the Civil Rights Act of 1964 does not ensure civil rights for people with disabilities?
25 Years of Olmstead Rights: James & Jenny McLelland’s Story
Little Lobbyist James McLelland and his mom Jenny were invited to the U.S. Justice Department’s celebration of the Olmstead Decision to share their story.
Historic News: Prohibiting Disability Discrimination in Federal Programs!
On May 1, the Biden Administration took a giant step forward in disability rights, issuing its final rule on the long-awaited Health & Human Services updates to Section 504 of the Rehabilitation Act of 1973.
Knowing How to Do All the Stuff: An Interview with Kelley Coleman
Her voice was like the spirit guide to parenting I’ve always wanted, telling me how I could do all the hard things, making suggestions and holding my hand.
Be a Hero: In Memory of Ady Barkan
There is the type of courage where we put on our armor and charge into the battlefield, and there is the type of courage where we strip down and bare our vulnerabilities for all to see.