Advocacy, within my capacity, is so important to me. Telling my family’s story helps people understand the importance of an equitable and just care system.
Medicaid provided critical coverage and services for my son Ethan, making it possible for him to survive with Heterotaxy, and allowing me to choose life, every day.
When I walked into the room that day, my first ever visit to the White House, I thought I was there to advocate for my son, who, with multiple severe heart defects, a rare congenital disease, and a neurodivergent brain, certainly ‘belonged’ in a gathering of disabled people.
