Small Voices, BIG Impact: Little Lobbyists Takes on Harrisburg!
Cole's mom writes about the electric mood at the Harrisburg, PA, stop on the "Sick of It! Fix Health Care Now" bus tour.
We had a high school student from Louisville who had a heart attack on school grounds and was given CPR and he survived. This student testified before the Education Committee.
Danny had cerebral palsy and intellectual disabilities. He lived at home with us until he was 24, until my mother did not have enough help to provide the 24/7 care he needed.
Together we represent millions of people with disabilities, patients, and people with chronic illnesses across the United States, and we are extremely concerned by your comments.
Even in serious situations, she brought joy with her — dressing you up in the most adorable tiny pink Doc Martens, trick-or-treating in the Senate, celebrating victories small and large. She kept in touch. She always showed up.
President Reagan knew this was wrong, so he created the Medicaid waiver program, allowing states to "waive" Medicaid's institutional bias for people with disabilities, like Katie, who wanted to get the care they needed in their own homes and communities.
Most of what’s going on in the world right now appears beyond our control; thus, we freeze. Recovering from a single incidence of trauma is difficult; recovering from a series of traumatic events is even harder, especially when the trauma is ongoing.
Now imagine having a child with this condition during this global pandemic and you can maybe emphasize with a fraction of the terror we feel daily in making basic decisions like, should my son go play outside with friends?
When we say people have “special needs” instead of disabilities, we’re emphasizing “needs” instead of “rights.” In fact, disabled people have rights granted to them by law, including the Americans with Disabilities Act (ADA).
A large investment is essential for building a sustainable HCBS infrastructure that can begin to address the magnitude of need in our communities, both increasing access to Medicaid HCBS and addressing the direct care workforce crisis.
Getting my social work degree is the long-delayed answer to a professional calling to a helping profession. A calling I ignored for over a decade because good health benefits, so critical for my family, kept me tied to my old job.
Today, the Supreme Court once again affirmed that the Affordable Care Act and Patient Protection and Affordability Act (the ACA) is the law of the land. An effort led by Republican Attorneys General to overturn a key provision, the ACA’s protection for pre-existing conditions, has been defeated.
I’m a BIPOC, queer, autistic, and disabled visual artist, poet, and autistic advocate originally from New Orleans, LA. I currently reside in San Antonio, TX.