Meet Our New AAPD Intern: Cheri Montgomery!
I am deeply passionate about advocating with the disability community, and I cannot wait to spend the next few months serving and learning alongside this incredible community.
Sharing the Journey with Jeneva: Liz Randolph on When a Feeding Tube Is Forever (And That’s OK)
The psychosocial needs of young adults are not being met in either setting, pediatrics or adult care, currently. Our healthcare system is in desperate need of help.
Four Little Lobbyists Moms Share State of the Union Experience
Last week four of our Little Lobbyists families were honored to attend the State of the Union, representing all of our families of kids with complex medical needs and disabilities. We asked them to share their experience with us.
Sharing the Journey with Jeneva: Laura Robeson on Medicaid Expansion
Danny loves meeting people and seeing his friends at the grocery store, library, and swimming pool. Danny truly connects with people and builds community.
In Texas, the ACA and Medicaid Saved my Child's Life
As I sit with my son Raphael, who has complex medical needs, I wonder—how is Texas defending life when it attempts to pull the ACA and Medicaid protections away from my son and many others like him?
Medicine is only life saving if we can afford it. (by Tasha Nelson)
A medication is only life-saving in use if it is accessible to the patient. If I can’t afford it, Jack can’t benefit from it.
To my son, on the eve of his first day of kindergarten (by Ali Chandra)
Instead of college, I quietly, carefully let myself hope that you’d take a step one day.
Any of Us Could Be a Refugee (by Jeneva Burroughs Stone)
My own son is 22; on 9/11, Robert was only 4 years old, a Buzz Lightyear fan enrolled in preschool. Our family lives in Bethesda, Maryland, and we were face to face with fear that day:
Affordable Healthcare is the Bedrock of American Self-Reliance (By Jeneva Stone)
I wanted more: The ability to live how I wanted to live. The freedom to do what was best for my family.
The Power of Medicaid (by Jeneva and Robert Stone)
Unlike private insurance, Medicaid is designed for people with disabilities: It provides all 30 boxes of medical supplies Rob needs every month. His specialty medications are covered. His therapies are covered.
From Parent, to Advocate, to Leader
by Jessica Fox I am a mom. When my daughter was born with a heart condition requiring a high level
Keep Health Care in Mind When You Vote (by Jodi Aleshire)
Now, you may be saying "if it costs so much, just suck it up and get health insurance. It's not the government's fault that you don't -" yeah, I’m gonna need you to stop.
My Son is in Hospice and his Healthcare Matters (by Tonya Prifogle)
As Colton became more ill, he needed more pain medication to remain comfortable. The prescription was written, but when we tried to fill it the medication was denied.