Small Voices, BIG Impact: Little Lobbyists Takes on Harrisburg!
Cole's mom writes about the electric mood at the Harrisburg, PA, stop on the "Sick of It! Fix Health Care Now" bus tour.
I wanted more: The ability to live how I wanted to live. The freedom to do what was best for my family.
Unlike private insurance, Medicaid is designed for people with disabilities: It provides all 30 boxes of medical supplies Rob needs every month. His specialty medications are covered. His therapies are covered.
Now, you may be saying "if it costs so much, just suck it up and get health insurance. It's not the government's fault that you don't -" yeah, I’m gonna need you to stop.
As Colton became more ill, he needed more pain medication to remain comfortable. The prescription was written, but when we tried to fill it the medication was denied.
In her first two years, Lorelei had more scary medical diagnoses, needed additional surgeries, hospital stays, and therapies.
Best Friend on Wheels showed me that people underestimate kids with disabilities all the time, not just my sister, and that I had to speak up for my sister so that people would realize what she is capable of.
These stories that we have taken to Congressional offices can’t be boiled down to a representative few. Each and every child and family is different with different diagnoses and experiences.
For 6 years, since my son’s birth in 2010, I was able to post pictures of my children to just my friends; to celebrate, to enjoy, and to brag about how wonderful they are, just like a lot of other parents do on social media.