Meet Our New AAPD Intern: Cheri Montgomery!
I am deeply passionate about advocating with the disability community, and I cannot wait to spend the next few months serving and learning alongside this incredible community.
Jeneva is thrilled to interview Alice Wong (she/her), a disabled activist, media maker, and consultant. Alice is the Founder and Director of the Disability Visibility Project® (DVP), an online community dedicated to creating, sharing and amplifying disability media and culture created in 2014.
What else does health care mean to me? That one day soon, our protracted civil war over the right to health care will be over.
All U.S. states have Medicaid waivers for children. Many have adopted a specific child waiver known as a Katie Beckett waiver, named for the little girl who, in 1981, inspired Ronald Reagan to request the first changes to Medicaid that allowed children like Katie to leave hospitals and come home.
As a parent and an advocate for my son, I am committed and obligated to find what fits and works for Israel's educational and spiritual development so that he may develop into the best human being he was created and designed to be.
Jamie is a member of Little Lobbyists, and her articles about her family's experiences with disability and advocacy are frequently featured in national publications.
The ACA cleared the way for us to become entrepreneurs in 2013.
Summer is an epic time for my family. Our long running joke: We’re all part fish, so summer involves lots of time at beaches, lakes, and pools.
Little Lobbyists, a family led group advocating for children with complex medical needs and disabilities, has joined 18 other national disability rights organizations in filing an amicus brief in the Supreme Court defending the Affordable Care Act (ACA).
Ken Capone, is the Director of People On the Go of Maryland, a statewide self-advocacy organization for people with disabilities. The Maryland State Assembly often turns to Ken to elucidate disability issues in its legislative deliberations.
Josephine was a micro-preemie, born at exactly 24 weeks gestation, 1 lb., 12 oz., and 12 inches long. She was the size of six pieces of butter. As a result of her early birth Josephine had poor lung development.
As Congress moves to pass legislation to ease the strain on families across the country, it is critical that they also move to protect and support the rights and safety of people with disabilities, including children with complex medical needs and disabilities.
Since birth, I have had over 30 hospitalizations for weeks at a time as well as 15 surgeries. I take 21 different medications, including over 35 pills daily, and 2-4 hours of intense respiratory therapies.