DC Week of Action (and Joy)
Little Lobbyists' intern Grace Heuer writes about taking the fight to Capitol Hill...and rethinking what advocacy can look like.
All too often, an unforgivable and criminal pattern plays out when a parent or caregiver murders their disabled child or family member.
HCBS COVID relief includes additional funding for HCBS to reduce waiting lists, and crucial support for home health care workers and direct support professionals.
Our struggle made clear the reality that states have no contingency plans for medically complex and disabled dependents, should the worst happen during this pandemic.
We are still super early in the discussions around plain language translation. It's tricky – you really you really can't automate it, even the plain language translations need to be fact checked and lawyered.
When Anian was younger and first starting school, I looked for books about Down Syndrome to read to his class. I noticed they were difficult to find and impossible to find with a Black child with Down Syndrome.
On December 10, the U.S. Supreme Court heard oral arguments in the latest effort to do away with this crucial piece of legislation, yet court-watchers believe the justices signaled a willingness to let the law stand. We can breathe a small sigh of relief, for the moment.
If it’s not obvious by now, it should be: Health care forms the bedrock of a functioning and sustainable economy.
Jeneva is thrilled to interview Alice Wong (she/her), a disabled activist, media maker, and consultant. Alice is the Founder and Director of the Disability Visibility Project® (DVP), an online community dedicated to creating, sharing and amplifying disability media and culture created in 2014.
What else does health care mean to me? That one day soon, our protracted civil war over the right to health care will be over.
All U.S. states have Medicaid waivers for children. Many have adopted a specific child waiver known as a Katie Beckett waiver, named for the little girl who, in 1981, inspired Ronald Reagan to request the first changes to Medicaid that allowed children like Katie to leave hospitals and come home.
Jamie is a member of Little Lobbyists, and her articles about her family's experiences with disability and advocacy are frequently featured in national publications.
Ken Capone, is the Director of People On the Go of Maryland, a statewide self-advocacy organization for people with disabilities. The Maryland State Assembly often turns to Ken to elucidate disability issues in its legislative deliberations.