DC Week of Action (and Joy)
Little Lobbyists' intern Grace Heuer writes about taking the fight to Capitol Hill...and rethinking what advocacy can look like.
So You Want to Save Health Care: Here’s How (by Jeneva Stone)
If it’s not obvious by now, it should be: Health care forms the bedrock of a functioning and sustainable economy.
Spelling It Out: The ADA and the Right to Community (by Bob Williams)
I believe my life, while molded by many factors, has been possible by the love and belief that my family and others have had in me.
Sharing the Journey with Jeneva: Staying Visible with Alice Wong
Jeneva is thrilled to interview Alice Wong (she/her), a disabled activist, media maker, and consultant. Alice is the Founder and Director of the Disability Visibility Project® (DVP), an online community dedicated to creating, sharing and amplifying disability media and culture created in 2014.
What Health Care Means to Me
What else does health care mean to me? That one day soon, our protracted civil war over the right to health care will be over.
Keeping Our Families Together: Home and Community-Based Services 101
All U.S. states have Medicaid waivers for children. Many have adopted a specific child waiver known as a Katie Beckett waiver, named for the little girl who, in 1981, inspired Ronald Reagan to request the first changes to Medicaid that allowed children like Katie to leave hospitals and come home.
Gifts I Am Sharing with My Son (by Rico Winston)
As a parent and an advocate for my son, I am committed and obligated to find what fits and works for Israel's educational and spiritual development so that he may develop into the best human being he was created and designed to be.
Sharing the Journey with Jeneva: Jamie Davis Smith on Writing About Children with Disabilities
Jamie is a member of Little Lobbyists, and her articles about her family's experiences with disability and advocacy are frequently featured in national publications.
We're In This Together: Peter Witzler on Epic Summers
Summer is an epic time for my family. Our long running joke: We’re all part fish, so summer involves lots of time at beaches, lakes, and pools.
Little Lobbyists Files Amicus Brief in Defense of the Affordable Care Act in the Supreme Court
Little Lobbyists, a family led group advocating for children with complex medical needs and disabilities, has joined 18 other national disability rights organizations in filing an amicus brief in the Supreme Court defending the Affordable Care Act (ACA).
Sharing the Journey with Jeneva: Moving Forward with Ken Capone
Ken Capone, is the Director of People On the Go of Maryland, a statewide self-advocacy organization for people with disabilities. The Maryland State Assembly often turns to Ken to elucidate disability issues in its legislative deliberations.
Sharing the Journey with Jeneva: Samantha McGovern COVID-19 Thoughts
Josephine was a micro-preemie, born at exactly 24 weeks gestation, 1 lb., 12 oz., and 12 inches long. She was the size of six pieces of butter. As a result of her early birth Josephine had poor lung development.
Disability Community Asks for COVID-19 Response Legislation
As Congress moves to pass legislation to ease the strain on families across the country, it is critical that they also move to protect and support the rights and safety of people with disabilities, including children with complex medical needs and disabilities.