Ella, Riley, and Victoria's Stories: Life Can Change in the Blink of an Eye
Public service and advocacy run deep in the LaVigne family.
We're In This Together: Peter Witzler on Epic Summers
Summer is an epic time for my family. Our long running joke: We’re all part fish, so summer involves lots of time at beaches, lakes, and pools.
Sharing the Journey with Jeneva: Moving Forward with Ken Capone
Ken Capone, is the Director of People On the Go of Maryland, a statewide self-advocacy organization for people with disabilities. The Maryland State Assembly often turns to Ken to elucidate disability issues in its legislative deliberations.
Sharing the Journey with Jeneva: Samantha McGovern COVID-19 Thoughts
Josephine was a micro-preemie, born at exactly 24 weeks gestation, 1 lb., 12 oz., and 12 inches long. She was the size of six pieces of butter. As a result of her early birth Josephine had poor lung development.
Sharing the Journey with Jeneva: Liz Randolph on When a Feeding Tube Is Forever (And That’s OK)
The psychosocial needs of young adults are not being met in either setting, pediatrics or adult care, currently. Our healthcare system is in desperate need of help.
Four Little Lobbyists Moms Share State of the Union Experience
Last week four of our Little Lobbyists families were honored to attend the State of the Union, representing all of our families of kids with complex medical needs and disabilities. We asked them to share their experience with us.
Sharing the Journey with Jeneva: Laura Robeson on Medicaid Expansion
Danny loves meeting people and seeing his friends at the grocery store, library, and swimming pool. Danny truly connects with people and builds community.
Raising Our Voices Together to Make a Difference
Most families, like mine, have to fight for insurance coverage to cover our complex dental issues and insurance will constantly deny treatments. I think this is wrong.
Every Child Deserves a Chance
When we decided to have our first child, we were young, healthy, working parents who assumed we’d find great childcare and be able to continue our lives (although maybe a bit more tired than before) as we always have.
A Book that Shaped Me: Best Friends on Wheels by Debra Shirley (by Ben Smith, 5th Grade)
Best Friend on Wheels showed me that people underestimate kids with disabilities all the time, not just my sister, and that I had to speak up for my sister so that people would realize what she is capable of.