hcbs
Renzo is 38 and living what some might call an enviable life. Entering his home, you’d quickly realize his passion for the guitar; several are displayed on his wall. You’d also learn, from the memorabilia and the books on his shelves, that he has a thing for the
carecantwait
Dear Senator Sinema, My daughter, Taryn, is 16. She loves to go camping, she loves her family, and she gives great hugs. She was also born with very complex medical needs, as well as cognitive and physical disabilities. You may remember meeting Taryn and me last March when we had
101-series
The Senate and the U.S. House of Representatives have voted to allow legislators to begin drafting President Biden’s $3.5 trillion “human infrastructure” package through budget reconciliation. The Biden Administration has asked for $400 billion for Home and Community-Based Services (HCBS), which are part of the federal Medicaid
state-advocates
An Open Letter to the Centers for Medicare & Medicaid Services (CMS): My name is Mallorie Hatcher from Johnson City, Tennessee. I work full-time as an occupational therapist. I am the proud parent of a nine-year-old daughter, Londyn, and a seven-year-old son, Nolan. As a member of Little Lobbyists, I
federal-issues
As far back as I can remember, I have always found ways to express myself that others can understand. It is why I escaped the discrimination others still endure. I have significant motoric, and speech, disabilities due to cerebral palsy. On the wall of my office hangs a piece of
reflections
As the mother of a young man with complex medical needs and disabilities, health care means peace of mind: knowing that Rob’s medical and adaptive needs will be met. That Rob can take advantage of technology and medical advances, such as his augmentative and alternative communication (AAC) device. Rob’
medicaid
Last week, Little Lobbyists families were invited to participate in a Senate press conference opposing President Trump’s proposed budget cuts to Medicaid. Following Senators Schumer, Murray, Stabenow, and Wyden, Little Lobbyists member Cristina Perez Edmunds (with her son Oscar by her side) delivered an unforgettable reminder of the power
medicaid
Laura Robeson lives in Prairie Village, Kansas, with her son, Danny, age eight, and her husband. Laura has an M.Ed. in Elementary Education from Rockhurst University and, while she currently stays home with Danny, considers herself a lifelong educator. Laura attended the 2019 State of the Union Address as
medicaid
Little Lobbyists vehemently opposes the Trump Administration’s proposed overhaul of Medicaid funding. Despite the proposal’s misleading name, “Healthy Adult Opportunity” will jeopardize access to health care for millions. It will have devastating consequences for poor, elderly, and disabled Americans – including children with complex medical needs and disabilities -
affordable-care-act
Currently, Texas Governor Greg Abbott and Attorney General Ken Paxton are fighting to overturn the ACA. Governor Abbott, a pro-life politician, has said, “Texas has become the national leader in defending life. As governor, I will fight for every child to have a chance at life." But as I
medicaid
Little Lobbyists strongly opposes the state of Tennessee’s proposal to block grant Medicaid. On May 29, 2019, the Tennessee state legislature passed a bill requiring the governor to seek federal approval for a waiver to convert much of the federal funding for its Medicaid program into a block grant.
ll-statements
The following is a transcript of remarks given at a Press Conference in the U.S. Capitol, hosted by members of the Senate and Protect Our Care, at the closing of Medicaid Awareness Month on April 30, 2019 I’m Jeneva Stone from Maryland and I’m a member of