Logan's Story: Weird in the Best Ways
Mel Sabin's son was born with a rare genetic disorder, Cri du Chat syndrome. This happy little man with great taste in music is the best kid a single mom could ask for.
Latest
Ethan's Story: Surviving Against the Odds with Heterotaxy
Medicaid provided critical coverage and services for my son Ethan, making it possible for him to survive with Heterotaxy, and allowing me to choose life, every day.
Landry's Story: Planning for a Future for a Child with Down syndrome
My son Landry counts on Medicaid for the care he needs, and allows us to plan ahead for the rest of his life.
James' Story: Raising a Child in Community
It takes a village—and family caregiving—to raise a child.
Amelia's Story: Brief Lives Impact Us Forever
Amelia died of spinal muscular atrophy at three months old. She left an outsized legacy.
Vivian's Story: Already an Advocate at Age 11
At age 11, Vivian is already advocating for herself and fellow medically complex children, thanks to Medicaid coverage that helps her live a full and active life in her community.
Emma's Story: Come See a Day in My Daughter's Life
Emma and her sister were born at just 27 weeks. Home and community-based services keeps Emma here with her family, where she belongs.
Kinsley's Story: A Rough Ride for a Ray of Sunshine
Kinsley was born with two rare diseases, and then she got cancer.
Olivia's Story: Finding New Roots in Pennsylvania
Olivia is a firecracker who loves baking and cracking jokes. Medicaid helps her live at home with her family, where she regularly does both.
Charlie's Story: Medicaid Builds A Future for Medically Complex Children
Charlie's Medicaid and access to home and community based services gives him the best quality of life, and future.
Olive's Story: A Smart Cookie Who Loves Crumble
Julie and her family relocated to Missouri from their home state of Arkansas to access better care for their daughter Olive.
Audrey's Story: Medicaid Keeps Kids and Families Together
Without Medicaid, Audrey could become a ward of the state, instead of at home with people who love her.
David's Story: Medicaid is a Lifeline in Our Rural Community
Our close-knit Alaskan community knows it takes a village — and Medicaid — to raise a child.
accident
Liviana's Story: An Accident Can Change Your Life Forever
When a tree branch fell on our daughter Liviana's head, she became a totally different person. Medicaid was there for her in her time of need.
hospitals
Rural Hospitals Need Medicaid.
Rural hospitals across the U.S. count on Medicaid and Medicare funding to keep their doors open. Without Medicaid, these facilities could close.
medicaid
Ansley's Story: How Supportive Services Transform the Lives of Medically Complex Children
The Children's Center at the University of Southern Mississippi values medically complex children as people and provided my daughter Ansley with the best quality of life.
medicaid
Ian's Story: How the Medicaid Health Insurance Premium Payment Program Saves Lives
The Medicaid Health Insurance Premium Payment Program backs up our private insurance to keep Ian safe and thriving.
trump-administration
What Trump's First 100 Days Mean for Medically Complex Children and Their Families
Trump's first hundred days are threatening medical research; critical programs children and families rely upon for survival; and continued access to medical supplies, equipment, and medications.
family-advocacy
Unraveling Bias in Healthcare: We Need NICU Advocates (by Anne Louis)
There was a time while I was caring for Adonise as an infant in the NICU when people tried to apologize for things they did not understand about my son. The unknown and the undescribed. He spent 361 days in the neonatal intensive care unit (NICU), where he received a
news
Meet Jenny: Our New HCBS Policy Director!
Hi! I’m Jenny McLelland and I’m the Director of Policy for Home and Community-Based Services for Little Lobbyists. My family lives in Clovis, a small city in the agricultural Central Valley of California. My husband is a physical education teacher, and I’m a retired police officer. We
medicaid
#CareCantWait: Reflections from the Bus Tour (By Elena Hung)
On August 26, 2024, the Care Can’t Wait bus tour kicked off its first event in Chicago, Illinois. "Care on Tour" would wend its way through nine cities in seven states. It was part of an ongoing national campaign by the Care Coalition that highlights the importance
From Books to Belonging (by Alison Chandra)
A few weeks ago, I sat in a room in the White House, surrounded by disabled advocates, and listened to a man named Mychal Threets speak about library joy. He was a panelist at the event, the White House Disability Pride Convening I’d seen Mychal on TikTok before as
family-advocacy
What I Learned by Advocating with Little Lobbyists (by Anne Louis)
My son Adonise is a second-generation Haitian-American who has a teacher and a technology professional for parents. Adonise is curious, rambunctious, funny, and intelligent. He’s a budding drummer, and he loves the playground and to wave the Haitian flag every morning. We call him Donnie, but I call him
family-advocacy
Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone)
This spring, PBS aired Understanding Autism, a documentary by filmmaker Scott Steindorff, who was diagnosed with autism as an adult. Steindorff wants to reframe the conversation about autism by focusing on the incredible talents and personalities of autistic people. The film is a rewarding and refreshing look at neurodiversity. Little