accident
Liviana's Story: An Accident Can Change Your Life Forever
When a tree branch fell on our daughter Liviana's head, she became a totally different person. Medicaid was there for her in her time of need.
Latest
hospitals
Rural Hospitals Need Medicaid.
Rural hospitals across the U.S. count on Medicaid and Medicare funding to keep their doors open. Without Medicaid, these facilities could close.
medicaid
Ansley's Story: How Supportive Services Transform the Lives of Medically Complex Children
The Children's Center at the University of Southern Mississippi values medically complex children as people and provided my daughter Ansley with the best quality of life.
medicaid
Ian's Story: How the Medicaid Health Insurance Premium Payment Program Saves Lives
The Medicaid Health Insurance Premium Payment Program backs up our private insurance to keep Ian safe and thriving.
trump-administration
What Trump's First 100 Days Mean for Medically Complex Children and Their Families
Trump's first hundred days are threatening medical research; critical programs children and families rely upon for survival; and continued access to medical supplies, equipment, and medications.
family-advocacy
Unraveling Bias in Healthcare: We Need NICU Advocates (by Anne Louis)
There was a time while I was caring for Adonise as an infant in the NICU when people tried to apologize for things they did not understand about my son. The unknown and the undescribed. He spent 361 days in the neonatal intensive care unit (NICU), where he received a
news
Meet Jenny: Our New HCBS Policy Director!
Hi! I’m Jenny McLelland and I’m the Director of Policy for Home and Community-Based Services for Little Lobbyists. My family lives in Clovis, a small city in the agricultural Central Valley of California. My husband is a physical education teacher, and I’m a retired police officer. We
medicaid
#CareCantWait: Reflections from the Bus Tour (By Elena Hung)
On August 26, 2024, the Care Can’t Wait bus tour kicked off its first event in Chicago, Illinois. "Care on Tour" would wend its way through nine cities in seven states. It was part of an ongoing national campaign by the Care Coalition that highlights the importance
From Books to Belonging (by Alison Chandra)
A few weeks ago, I sat in a room in the White House, surrounded by disabled advocates, and listened to a man named Mychal Threets speak about library joy. He was a panelist at the event, the White House Disability Pride Convening I’d seen Mychal on TikTok before as
family-advocacy
What I Learned by Advocating with Little Lobbyists (by Anne Louis)
My son Adonise is a second-generation Haitian-American who has a teacher and a technology professional for parents. Adonise is curious, rambunctious, funny, and intelligent. He’s a budding drummer, and he loves the playground and to wave the Haitian flag every morning. We call him Donnie, but I call him
family-advocacy
Little Lobbyists Families in the News: “Understanding Autism” on PBS (by Jeneva Stone)
This spring, PBS aired Understanding Autism, a documentary by filmmaker Scott Steindorff, who was diagnosed with autism as an adult. Steindorff wants to reframe the conversation about autism by focusing on the incredible talents and personalities of autistic people. The film is a rewarding and refreshing look at neurodiversity. Little
family-advocacy
We Belong: Why Community Integration Matters
In July, the Care Can’t Wait Coalition sponsored several events on community integration in Washington, DC, including a panel at the White House, a Congressional briefing, and a Summit at the Martin Luther King, Jr. Memorial Library. Community integration is at the heart of disability rights, and is supported