Lorelei

Lorelei

Age 4, Ohio

Meet Lorelei. Lorelei loves preschool and dance class (she takes tap and ballet) and her favorite person is her big sister Adelaide. Lorelei has Down syndrome. She also had non immune fetal hydrops, duodenal atresia, hypothyroidism, perforated ear drums, and hearing loss. She has a pacemaker for third degree heart block, has had four hernia repairs, has tubes in both ears and uses hearing aids. She attends speech therapy 1-2 times per week. In winter of 2018 she was in the PICU twice – once for RSV and again two weeks later with pneumonia.

If the Affordable Care Act were repealed Lorelei’s mom, Kate says: “My daughter Lorelei and I are both at risk if we do not have protection for pre-existing conditions. Because our insurance allows us accessible and affordable medical care, my daughter, Lorelei and I are alive. I was diagnosed with renal cancer in 2016. Every test and procedure that has saved our life, reduced our pain and increased skills (ie. speech, hearing aids, etc.) could easily be denied if the ACA was repealed.”

Submitted by Kate, Lorelei’s mom