Theo's Story: Sweet and Sassy
Born with a Vein of Galen aneurysm, this opinionated eight-year-old gets the support he needs to thrive through Medicaid.
143 articles
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Remembering Julie Beckett: Discovering Our Strength
Little Lobbyists honors the passing of an advocate who changed our children’s lives: Julie Beckett, the mother of Katie
World Down Syndrome Day: A Message of Hope (by Liz Zogby & Lauren Ochalek)
We find ourselves celebrating our third consecutive World Down Syndrome Day (WDSD) against the backdrop of a global pandemic; though,
What Does “Back to Normal” Mean for Schools? (by Agata Szczeszak-Brewer)
As the mother of a medically complex child, I was stunned by a recent Facebook post by a scientist friend
Disability Day of Mourning (by Elena Hung)
Disability Day of Mourning is an annual commemoration held on March 1st to remember the lives of people with disabilities
Share the Journey with Jeneva: Self-Direction & the Good Life with Alicia and Al Wopat
Self-directed or consumer-directed services are an increasingly popular option among state Home and Community-Based Services (HCBS) waivers. The Self-Directed Advocacy
Living the Life You Want: Self-Directed Services 101 (by Jeneva Stone)
What happens to disabled young adults after high school? Many families don’t know what to expect when school ends.
Share the Journey with Jeneva: Sherry Pickett Gets to the “Heart” of Advocacy
Share the Journey with Jeneva: Sherry Pickett Gets to the “Heart” of Advocacy Sherry Pickett has a Master’s Degree
Home and Community-Based Services Are a Human Right (by Jeneva Stone)
(Editor's note: edited and republished on 5/13/2025) In 1981, President Ronald Reagan learned about a 3-year-old
The Anxious Wait for Covid-19 Vaccinations for Our Children (by Angela Eilers)
September 24th felt like an eternity away. September 24th was my daughter Myka’s 12th birthday. We began counting down
Coping During Difficult Times: Safety, Control, Connection (by Jeneva Stone)
I’ve been thinking about trauma lately. Our children and our families have been through so much over the last
Wear a Mask at School! Protect Our Children!
Joyful, silly, and smart are words my husband and I would use to describe our six-year-old son. He is a
Why My Family Says “Disabled” Instead of “Special Needs” (by Jeneva Stone)
I still remember my first event with Little Lobbyists, a family-led group advocating for kids with complex medical needs and