Theo's Story: Sweet and Sassy
Born with a Vein of Galen aneurysm, this opinionated eight-year-old gets the support he needs to thrive through Medicaid.
Medical parents will know exactly where I’m going the second I say the following, “January is coming.” January is
My 7-year-old son Colton is in hospice. Our entire family has been gathered around his bedside for weeks. His health,
“Hello, my name is Sandra,” I recorded onto the senator’s voicemail as my own voice cracked. “I am calling
Like most couples, when we dreamed of having a child we dreamed about our child laughing, playing, growing up strong
I wish y’all could have seen my face when I was handed a megaphone, of all things. Actually, it
Best Friend on Wheels shaped me because it taught me that it is okay to have a sister with a
This Sunday, I’ll be celebrating Father’s Day as a dad for the eighth time. My first one was
Parents and family members of children with complex medical needs from across the country have sent us their stories. Stories
The first time a doctor suggested that my son was mentally retarded was a shock. Simon was five, and though
I chose life. I chose life when my husband and I planned to have a baby. I chose life when
I keep thinking about anonymity. That’s what President Obama gave us. For 6 years, since my son’s birth