pandemic
I can still remember our family’s first encounter with disaster preparedness–or lack thereof–it was the day of 9/11, 2001, and my son Rob was four years old. My husband and I had waved him off to preschool on that beautiful, bright blue morning at our home
state-advocates
We find ourselves celebrating our third consecutive World Down Syndrome Day (WDSD) against the backdrop of a global pandemic; though, undeniably, something has recently shifted. While much of the world, and certainly much of the United States, has decided that it is time to turn the page, close the book,
state-advocates
This week, two members of our Little Lobbyists community launched a drive to stop the Montgomery County Public Schools (MCPS) in Maryland from dropping their school mask mandate. Despite excellent organizing efforts and heart-felt testimony, including a petition that captured over 600 signatures in a week, the county Board of
pandemic
As the mother of a medically complex child, I was stunned by a recent Facebook post by a scientist friend who is cautiously advocating for dropping mask requirements in schools. He’s posted the recently released “Urgency to Normal” toolkit. My friend reminds us that he “was all-in at the
pandemic
When students were sent home from classrooms in March 2020, our public education workforce burned the midnight oil to execute a monumental set of tasks. While the outcomes varied by state and district, there was a feeling of community pulling together through the noise, uncertainty, and fear in the early
pandemic
September 24th felt like an eternity away. September 24th was my daughter Myka’s 12th birthday. We began counting down to her big day the minute the CDC, last May, approved Covid-19 vaccines for kids 12 and up. Myka, the youngest of my three kids, is the only unvaccinated person
pandemic
Joyful, silly, and smart are words my husband and I would use to describe our six-year-old son. He is a child who knows no stranger, genuinely loves everyone he comes across, and is obsessed with cars. The world is his oyster, and he loves being an active participant in life!
pandemic
As our last school year ended here in Florida, I was feeling optimistic about the summer and hopeful that with the widespread availability of Covid-19 vaccines we were at the end of this pandemic. My daughter Payton is seven years old and has just finished kindergarten. She loves dancing, being
pandemic
The CDC just recently lifted the mask mandate for those of us who have been fully vaccinated. Hurray! The moment we all waited for, right? Except that for some of us, our medically-complex, under-12-year-old children are still at risk every day in this Covid-19 world. We trusted the school districts
hcbs
In 1998, when my son Rob became disabled at the age of one, I knew nothing about disability services or advocacy or rights. I just knew that I wanted Rob to live at home with us, where any child belongs. Rob was a busy toddler who loved going to the
pandemic
In ordinary times, my son Rob is a thriving member of his community, a disability advocate, a local theater volunteer, and more. Rob also has a tracheostomy and compromised lungs, takes his meals through a feeding tube, and relies on a wheelchair to get around. If Rob contracts Covid, he
pandemic
My name is Erin Gabriel. I live in Beaver County in Western Pennsylvania with my husband and three children, Collin, Bridget, and Abby. My youngest daughter Abby is a beautiful, fun, mischievous ten-year-old who loves playing with her big sister and brother, going to the theater, exploring the outdoors, and,