reflections
We’re pleased to introduce a new series for the blog: “We’re In This Together” with our LL blog master, Jeneva (who’s also the author of our “Sharing the Journey with Jeneva” series). As parents, caregivers, and self-advocates who've struggled with unknowns, isolation, fear, stress, and
Little Lobbyists stand in solidarity with our brothers and sisters in the Black Lives Matter movement for racial justice, and fully support the right of all Americans to live safely in our communities and to take action against any institution that causes us harm. Since we began, Little Lobbyists have
advocacy
Jeneva is delighted to interview Ken Capone, Director of People On the Go of Maryland, a statewide self-advocacy organization for people with disabilities. The Maryland State Assembly often turns to Ken to elucidate disability issues in its legislative deliberations. Tell me about yourself. I was the second youngest of six
preemie
Samantha McGovern lives in Springfield, Virginia, with her daughter Josephine and her husband. Samatha is a member of Little Lobbyists. Tell me about your family’s medical needs. We’re a pretty unique family of three: each of us has medical needs. Two years ago, Josephine’s dad was treated
pandemic
All of us with medically complex children have good reason to fear the spread of the new coronavirus, COVID-19. Experts are right: Handwashing is the first line of defense against all viruses and bacteria. However, there’s “handwashing”, and then there’s real handwashing. Little Lobbyists “medical moms” like Lori
mitochondrial-disease
Liz Randolph attends Monroe Community College where she is completing her associate’s degree in Health Studies. Her goal is to become a nurse practitioner. She is a member of the Phi Theta Kappa Honor Society and the Co-President of the Holocaust, Genocide, and Human Rights Project at Monroe Community
medicaid
Laura Robeson lives in Prairie Village, Kansas, with her son, Danny, age eight, and her husband. Laura has an M.Ed. in Elementary Education from Rockhurst University and, while she currently stays home with Danny, considers herself a lifelong educator. Laura attended the 2019 State of the Union Address as
wheel-chair
I’ve seen this meme on Facebook a few times. If you can’t see the graphic, it’s a man underwater, standing beside an empty wheelchair. The caption reads “The power of water. The most beautiful picture you’ll see today.” People share it because it feels inspirational that
fifth-circuit
Little Lobbyists strongly condemn the Fifth Circuit Court of Appeals ruling that the Affordable Care Act's individual mandate is unconstitutional, and the court’s remanding the case back to lower court district Judge Reed O'Connor for a final decision on which parts of the law he
friendship
I had taken my daughter Penny to the Metropolitan Museum of Art in New York City. After a morning of Penny marveling at the masterpieces, we stopped for lunch in the cafeteria. Penny has a rare neurological disorder called Aicardi Syndrome. She uses a wheelchair, has a g-tube, has intellectual
affordable-care-act
Currently, Texas Governor Greg Abbott and Attorney General Ken Paxton are fighting to overturn the ACA. Governor Abbott, a pro-life politician, has said, “Texas has become the national leader in defending life. As governor, I will fight for every child to have a chance at life." But as I
pharmaceuticals
My name is Tasha Nelson and I want to talk to you about my amazing son Jack. Jack is a spirited, funny and imaginative 8 year old. He has a passion for Marshmello, video games, extreme weather and the Titanic. He sings in our local children's choir, is