Editor - Little Lobbyists Family Alliance (Page 2)

Cole and a canine friend lounging on the couch

mitochondrial-disease

Cole's Story: An Empathetic, Curious Lover of Animals and Nature

Without Medicaid, I would be bankrupt, homeless, and separated from my child.

Danny Robeson on a bus with his family, looking out the window.

kansas

Danny's Story: An Animal-Loving Eighth Grader

Without Medicaid, panda-loving Danny Robeson would be institutionalized away from his family and community.

Logan as a baby lying on a blanket surrounded by medical equipment.

Logan's Story: Weird in the Best Ways

Mel Sabin's son was born with a rare genetic disorder, Cri du Chat syndrome. This happy little man with great taste in music is the best kid a single mom could ask for.

heterotaxy

Ethan's Story: Surviving Against the Odds with Heterotaxy

Medicaid provided critical coverage and services for my son Ethan, making it possible for him to survive with Heterotaxy, and allowing me to choose life, every day.

A Black toddler chewing thoughtfully on a teether toy.

down syndrome

Landry's Story: Planning for a Future for a Child with Down syndrome

My son Landry counts on Medicaid for the care he needs, and allows us to plan ahead for the rest of his life.

James in a wheelchair smiling up at his brother Rafe. The Orono bog expands behind them in the background.

James' Story: Raising a Child in Community

It takes a village—and family caregiving—to raise a child.

A baby wearing an oxygen cannula, a floral headband, and a soft green scarf.

Amelia's Story: Brief Lives Impact Us Forever

Amelia died of spinal muscular atrophy at three months old. She left an outsized legacy.

cerebral palsy

Vivian's Story: Already an Advocate at Age 11

At age 11, Vivian is already advocating for herself and fellow medically complex children, thanks to Medicaid coverage that helps her live a full and active life in her community.

Emma and her daughter snuggling outside the US Capitol

premature

Emma's Story: Come See a Day in My Daughter's Life

Emma and her sister were born at just 27 weeks. Home and community-based services keeps Emma here with her family, where she belongs.

Kinsley and a friend preparing to shoot a bow and arrow.

Neurofibromatosis

Kinsley's Story: A Rough Ride for a Ray of Sunshine

Kinsley was born with two rare diseases, and then she got cancer.

Olivia next to the US Capitol with a soft smile on her face.

Olivia's Story: Finding New Roots in Pennsylvania

Olivia is a firecracker who loves baking and cracking jokes. Medicaid helps her live at home with her family, where she regularly does both.

A smiling Charlie and his parents at the U.S. Capitol.

Charlie's Story: Medicaid Builds A Future for Medically Complex Children

Charlie's Medicaid and access to home and community based services gives him the best quality of life, and future.