Abigail

Age 10, Pennsylvania

Meet Abigail. Abby is a beautiful, fun, mischievous  10 year old who loves playing with her big sister and brother, going to the theater, music, exploring the outdoors, and of course, all things Disney. She is the most authentic person you will ever meet, never pretentious or afraid to just be herself.

Abby has a rare genetic syndrome called Primrose Syndrome. She has epilepsy and mitochondrial dysfunction which impacts many of her organs. Medicaid helps her family significantly. Even though her family has private employer-based insurance, it wouldn't be possible to afford Abby's extensive medical bills without Medicaid. It has been essential in allowing Abby to access the care she needs to grow, live, and participate in her community.

Abby is Deaf-blind and attends fifth grade at a local school for Deaf children. Even though she can't speak or sign, she understands what people are saying and signing to her. She cherishes her friendships. She uses a special computer tablet to communicate that is funded by her private insurance and Medicaid. She also uses some tactile communication, often utilizing her sense of touch to make herself understood, or even to identify people if she cannot recognize their faces visually. At school, Abby receives multiple therapies and specialized education. Medicaid assists the school district in funding these therapies as well as the 1-1 aide that Abby needs.

Abby uses a custom wheelchair when she is out in public, which means she needs accessible ramps in stores and restaurants as well as accessible public transportation. Additionally, as a Deaf child, Abby needs an American Sign Language interpreter in order to understand what is being said. The ADA allows Abby to access her community, just like every other kid.

Submitted by Erin Gabriel, Abby’s mother